This self-supported clinic approved by NTSA was started in January 1994. The clinic is modeled after other clinics that have been functioning very successfully in the United States and in Great Britain for several years. We are very proud of the efforts of the physicians, the volunteers and the efforts of the families and friends that donate time and funds to keep the clinic operating.

At the clinic, we well review the questionnaire that families are asked to fill out with Dr. McClintock and Dr. David Daigh. Dr. McClintock will also perform a neurological examination, and may be assisted by a medical student or resident/intern. An important additional function of the clinic is to teach young physicians and medical students about tuberous sclerosis, so they may recognize cases when they come across one.

Dr. Robert Silverman, a dermatologist, and Dr. Susan Black, a geneticist, are also available during the clinic to answer questions in their respective areas. Dr. Silverman will be involved in screening parents and siblings for white spots and other skin conditions in an effort to verify diagnosis. Dr. Black will be available to address the genetic aspects of tuberous sclerosis. The newest additions to our clinic are Dr. Micheal Medlock a neurosurgeon, who will be available for consultation on aspects of epilepsy surgery and Dr. Phillip Pearl, a pediatric neurologist who practices with Dr. McClintock. We would value any suggestions or requests you have for additional specialists to become involved as the clinic develops.

Washington Metro Council members will be present at the clinic to help answer questions and to provide refreshments. We all have found that the conversation and experiences exchanged by the families and friends of tuberous sclerosis patients to be extremely valuable to the participants. We will hold group discussion with the physicians at the end of the clinic, time permitting.