Personal Experiences

The next clinic is
January 25, 1997

HOME WHAT IS TS? NEWSLETTER ARCHIVES LINKS PEN PAL CLINIC PROFILE UPCOMING EVENTS DIRECTORY GUEST BOOK / COMMENTS ABOUT US

"The nicest thing about the clinic is that you get to see all of the doctors in one setting and to be hooked up to people who have TS as a specialty. I also like to meet other parents and see what the current most thinking is about the disease."

Anne Carey, mother of Douglas (3) who has TS

"The reason I make the long trip is because I'm always glad to meet new families. I think all of us with children, from mildly to severely affected children, should get involved in some way and learn more... the clinic is the best way. I really think that it's important to pool our information, so we can learn more faster. You can't learn from one family as much as you can from 50 families - it's common sense. I know that the more people I meet the more I learn about my own situation."

Susan Taylor, clinic volunteer and mother of Chandlee (6)
who has TS and Peter (3)

"We wanted to find out more. We're trying to understand what to expect and how we can get involved with the association."
Carol and John Brumfield, parents of Elisabeth (3) with TS

"The most worthwhile thing [about starting the clinic] is when I see a waiting room full of parents and TS individuals... sharing tips and information and laughing together. It makes it easier knowing you're not the only one."
Nancy Elling, clinic coordinator and mother of Joanne (16), Samuel (13), Frankie (10) with TS

You can directly register through this site. Click here to find out what more about the clinic.